Parenting with Osteogenesis Imperfecta

8.13.2015
This article contains a video
Curated by
Brittany Déjean
Content via AttitudeLive
Source: 
AttitudeLive
Curated by
Brittany Déjean

Sam was born with Osteogenesis Imperfecta or Brittle Bone disease, but has found a way to do anything he has wanted. Despite any perceived limitations, he has been determined to be an active, hands-on dad. He and his wife, Jennifer had been planning to have kids since they were married, and they were elated to welcome their daughter into the world.

A journey that started with love

Sam's wife, Jennifer, sees Sam for who he is, not his wheelchair. The two work together, sharing responsibilities around the house and taking care of their daughter.

A big key to Sam’s ability to engage with his daughter is the versatility of his wheelchair, one he designed himself and developed with a mechanical engineering friend. (jump to 6:28 to see it). He found other chairs too restrictive, and now his chairs are sold worldwide. “Getting right to the floor is a key feature for me, ” he says. “I can lie on the ground and play with my little girl.”

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